In addition to Mael, our family includes Lian and little Nevin. We are eternally grateful that, in spite of the inherited Niemann Pick C disease, we were still so lucky that our other children are healthy, and this gives us a reason to live as normal a life as possible. Because all three of our children deserve to be happy in the here and now.
If you have questions about Niemann Pick C disease or of general interest, you are welcome to contact us.
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